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Hello All,
Just a quick note to let all my readers know I am still alive.
I have been battling extreme fatigue for the last week. It appears to be related to the low-pressure system that has brought thunderstorms and hail to this part of the world.
The joys of being barometrically sensitive…
I hope to be back on deck in a day or so. If I have anything worth writing about!
ttfn,
S.
Yes, I have been a little on the quiet side.
I have been denying the obvious and putting off the inevitable.
However, I’ve started taking my needles again. I hate it. It’s not fun.
Yuck. Icky. Poo.
Now, before I receive a flood of admonitory emails from people who think they know better, I have been on a Neurologist-approved break from my Copaxone for the last two months. This is an immuno-modulatory medication approved for use by people with relapsing-remitting Multiple Sclerosis.
It is a daily sub-cutaneous injection. It also hurts like Hell. It burns. It bruises. The injection sites itch and swell to golf-ball sized lumps and the whole area aches for days.
Imagine what it’s like when I use the alternative, the interferons to which I am allergic…
I have been using this stuff for longer than anyone else in my country. In a few short weeks it will be 9 years going on a hundred. I am thoroughly sick of it.
So, before I came to Texas, I met with my Neuro and discussed my immediate life plans. We decided – together - that I should take the needles with me, but stay off the medication for as long as I felt able.
In the last few weeks, the pain in my hands has been disturbing my sleep. I’m finding it increasingly difficult to do things that I had no problems with a fortnight ago. I now get out of breath walking up the short slope to cross the road and get to the famous local HEB. My legs burn with a lactic acid-like pain I had almost forgotten I had ever experienced in the past.
I’m dropping things. My fatigue is starting to affect my ability to move around. I burst into tears at TV ads featuring puppies, kittens and small children.
Frankly it’s just stupid.
It also means that my disease is active and my body is working its way up to a full blown relapse
So, last night I took the jab.
I’m very proud of myself – there was no ice-cream involved in the aftermath at all.
I’m still in a sulk, but I’m trying to get over it and on with my book.
One day at a time – at least until all we human pincushions unite and take over the world ….
ttfn,
S.
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